What is the Medical Home Portal?

Medical Home Portal is a great place for parents and professionals to get help for children and youth with special health care needs.  Professionals can get reliable and useful information and parents can learn more about their child's diagnosis and have a place to turn for information about coordinated care and access to quality health care.

When my child was first diagnosed it was an incredibly chaotic and scary time.  There was really nobody in my family that had been through a tough medical diagnosis.   Some of my early questions were,  What did this all mean?  How will we afford this? Where could I turn for all these answers.. and more!? There is an article titled A new (or old) diagnosis - "you are not alone" that has some great information that helps me to this day about caring for my daughter.  Knowing that you are not the only one, has been one of the biggest supports that has gotten me through tough days.

The portal currently has over 500 pages of content and resources, over 3800 links to other reliable and valuable web sites or downloadable information and much, much, more.  They are actively writing more content that is uploaded often to keep current with the changing system.  If there is something that you are not able to find they have a contact and feedback link to ask questions or leave comments.

My daughter requires a wheelchair for mobility and I found the article wheelchairs and adaptive strollers really helpful in learning about different types of options there are.  She is also starting to be more interested in using assistive technology for choice making and hopefully one day for communication.  The article titled augmentative communication is a great place to start if you are interested in checking into assistive technology.

I did and still do to this day have questions, nearly every day, about caring for my child.  Now we are on to subjects that deal with transition, equipment, education and more.  I feel very blessed to know that there are so many people out there dedicated to helping me find the things that will aide my daughter into having the best quality of life possible.

To find out more information about Medical Home Portal please visit their website at www.medicalhomeportal.org.