Medical Home Portal is a great place for parents and professionals
to get help for children and youth with special health care needs. Professionals can get reliable and useful
information and parents can learn more about their child's diagnosis and have a
place to turn for information about coordinated care and access to quality
health care.
When my child was first diagnosed it was an incredibly
chaotic and scary time. There was really nobody in my family that had
been through a tough medical diagnosis. Some of my early questions were, What
did this all mean? How will we afford this? Where could I turn for all
these answers.. and more!? There is an article titled A
new (or old) diagnosis - "you are not alone" that has some
great information that helps me to this day about caring for my daughter.
Knowing that you are not the only one, has been one of the biggest
supports that has gotten me through tough days.
The portal currently has over 500 pages of content and
resources, over 3800 links to other reliable and valuable web sites or
downloadable information and much, much, more.
They are actively writing more content that is uploaded often to keep
current with the changing system. If
there is something that you are not able to find they have a contact and
feedback link to ask questions or leave comments.
My daughter requires
a wheelchair for mobility and I found the article wheelchairs
and adaptive strollers really helpful in learning about different
types of options there are. She is also starting to be more interested in
using assistive technology for choice making and hopefully one day for
communication. The article titled augmentative communication is a great place to start if you are
interested in checking into assistive technology.
I did and still do to this day have questions, nearly every
day, about caring for my child. Now we are on to subjects that deal with
transition, equipment, education and more.
I feel very blessed to know that there are so many people out there
dedicated to helping me find the things that will aide my daughter into having
the best quality of life possible.
To find out more information about Medical Home Portal
please visit their website at www.medicalhomeportal.org.